Our mission is to advance biomedical knowledge in Multiple Sclerosis and support investigators in Neurology using best practices and comprehensive biostatistics expertise.
The NARCOMS Registry is a self-report registry for persons with Multiple Sclerosis (MS) that began enrolling participants in 1996. Persons with MS enroll and update their information semi-annually through online or paper surveys. Over 42,000 persons with MS have enrolled in NARCOMS and over 8,000 are currently active in the registry. The NARCOMS Registry Data Coordinating Center is responsible for the operations, data management and data analyses for the NARCOMS Registry.
Diet Quality
Key findings of how quality of diet impacts MS and its levels of disability
Employment in Registries
Understanding employment in MS by using registry data- German MS Register, NARCOMS, UK-MS Register
Profile of Primary Progressive MS
Primary Progressive MS is characterized by slow accumulation of disability from the beginning
CogEx is a multi-center, international clinical trial examining the effect of cognitive rehabilitation and exercise to improve cognition in people with progressive multiple sclerosis. Dr. Salter led the data coordinating center and statistical analyses for this trial.
MSMDC is a network of observational studies in MS that are aimed at addressing FAIR guiding principles in the field of MS. We created a metadata catalog for several North American MS studies which includes information on study design, selection criteria, and variables.